Showing posts with label narrative medicine. Show all posts
Showing posts with label narrative medicine. Show all posts

Saturday, May 5, 2012

Ethics and Patient Centered Care Lecture Deals with Diagnostic Uncertainty

5th Annual Sue MacRae Lecture
on Ethics and Patient-Centred Care


"What is to Be Learned from

Diagnostic Uncertainty in the Clinic?"

Featuring:

Chloƫ Atkins,PhD
Associate Professor, Department of Communication and Culture,
Law and Society Program, Faculty of Arts
University of Calgary

Wednesday, 23 May 2012, 4:10 – 5:30 pm

Room 106
Health Sciences Building
155 College Street

Atkins will read from her book, My Imaginary Illness: A Journey into Uncertainty and Prejudice in Medical Diagnosis. It is the story of Atkins's decades-long battle with a disease deemed imaginary, her frustration with a succession of doctors and diagnoses, her immersion in the world of psychotherapy, and her excruciating physical and emotional journey back to wellness.

As both a political theorist and patient, Atkins provides a narrative critique of contemporary medicine and its problematic handling of uncertainty and of symptoms that are not easily diagnosed or known. She convincingly illustrates that medicine's belief in evidence-based practice does not mean that individual doctors are capable of objectivity, nor that the presence of biomedical ethics invokes ethical practices in hospitals and clinics. Afterward, Atkins will use her experiential knowledge as a patient to discuss several educational, and institutional barriers to good decision-making in the clinic. Finally, She will outline the joint CIHR research project between University of Calgary and the University of British Columbia that she is co-leading with regard to MUPS (Medically Unexplained Physical Symptoms) and the problem of uncertainty and non-diagnosis in health care.

Admission Free - No Registration Required

Thursday, March 31, 2011

The 7, 024th Patient, Research About Open Heart Surgery and Recovery Explores Patient Narratives



click to see the larger poster

You are cordially invited to an art exhibition “The 7, 024th Patient”.

Location of exhibition:

DeGasperis Conservatory at Toronto General
Hospital, 585 University Avenue, 4th floor

This exhibition is a unique dissemination method based on research that explored patients' experiences of open-heart surgery and recovery. This exhibition embodies their lived experiences in an intimate landscape of poetry and photographic images. The research and creative team is composed of individuals from Ryerson University and Toronto General Hospital
including Dr. Jennifer Lapum, Dr. Terrence Yau, Dr. Kathryn Church,
Dr. Alison Matthews David and Perin Ruttonsha.


The exhibition is opened on Wednesday June 15, 2011 from
8:00am to 9:00pm with a reception, lecture and reading at 3:30pm. It is
also opened Thursday June 16 from 8:00am to 7:00pm. Come and see it
anytime and stay as long as you like.

This research dissemination project was supported by CIHR.

All are welcome to attend.

For more information, please contact:

Dr. Jennifer Lapum Associate Professor, PhD, RN
jlapum@ryerson.ca
Daphne Cockwell School of Nursing
Faculty of Community Services
Ryerson University
Toronto, Ontario
416-979-5000, ext. 6316

Saturday, March 26, 2011

Martin T. Donohoe MD FACP presents at Creating Spaces Conference, Toronto

We were pleased to receive news that Martin Donohoe MD FACP will be presenting a talk from his article published in Issue 8 of The International Journal of the Creative Arts in Interdisciplinary Practice, IJCAIP "Stories and Society, Using Literature to Teach Medical Students About Public Health and Social Justice" at the "Creating Space Conference" Arts and Humanities in the Education of Health Professionals to be held May 7 at Mt. Sinai, Toronto. Martin T. Donohoe MD FACP is an Adjunct Associate Professor, School of Community Health, Portland State University, Chief Science Advisor, Campaign for Safe Food, a Member of the Board of Advisors of the Oregon Physicians for Social Responsibility and Senior Physician, Internal Medicine, Kaiser Sunnyside Medical Centre.

Saturday, April 18, 2009

Stories of Sport, Disability, Rehabilitation, presentations by Brett Smith, Arthur Frank

Toronto Rehab and Toronto Rehabilitation Institute Research Department
and Spiritual Care Services

PRESENT

Dr. Brett Smith, PhD
Qualitative Research Unit
School of Sport and Health Sciences
University of Exeter

Dr. Brett Smith’s research interests revolve around the
psycho-social dimensions of spinal cord injury and
stories of disability. He is the co-editor of the journal
Qualitative Research in Sport and Exercise, and has
published extensively in a variety of medical, psychology,
and sociology journals.

Encountering Chaos: Exploring Responses to
a Spinal Cord Injury Narrative

Monday, April 27, 2009

12:00 - 1:00pm
Class Room A and B
Lyndhurst Centre
520 Sutherland Drive, Toronto


When Bodies Need Narratives: The Case of Becoming
Disabled Through Sport

Tuesday, April 28, 2009

12:00 - 1:00pm
Lecture Theatre
University Centre
550 University Avenue, Toronto


Dr. Arthur W. Frank
Department of Sociology
University of Calgary

Arthur Frank is a Professor of Sociology at the University of
Calgary and during 2008-09 has been visiting Professor
in the Dalla Lana School of Public Health at University
of Toronto. The core of his work is the study of illness
experience. His first book, At the Will of the Body, is the
story of his own illnesses and won the annual writers’
award from the National Coalition for Cancer Survivorship
in the US. His second book, The Wounded Storyteller,
sets out a framework of illness narratives that has been
taken up by many researchers, including Brett Smith and
Andrew Sparkes. His most recent book, The Renewal of
Generosity, won the 2008 annual medal in bioethics from
the Royal Society of Canada. His current projects include
SSHRC-funded research on people’s use of information
and communications technology in doing health work,
and also a CIHR-funded project on moral distress among
workers in pediatric intensive care units.

Wounded Storytellers and Since: Lessons from the Last
Fifteen Years, Especially about Rehabilitation

Friday, April 24, 2009

12:00 - 1:00pm
Lecture Theatre
University Centre
550 University Avenue, Toronto

If you have any questions, please contact Jim Huth, Ethics and Spiritual Care at
416-597-3422, ext. 3716.
Toronto Rehabilitation Institute

Wednesday, August 27, 2008

Narrative and Story Featured in Canadian Creative Arts in Health, Training and Education Journal














Photo by C. McLean "Reclamation"

Dr. Rita Charon, Director of Narrative Medicine at Columbia University, an internist and literary theorist, writes; “I realized that the narrative skills I was learning in my English studies made me a better doctor. I could listen to what my patients tell me with a greater ability to follow the narrative thread of their story, to recognize the governing images and metaphors, to adopt the patients’ or family members point of view, to identify the sub-texts present in all stories…any doctor, any medical student can improve his or her capacity for empathy, reflection and professionalism through serious narrative methods of study in reading, writing, reflecting and bearing witness to one another’s ordeals.”


We published an article in the September 2006 issue of The Canadian Creative Arts in Health, Training and Education Journal "The Poetry of Practice" written by Maureen Rappaport MD FCCFP, McGill University, Montreal Quebec. She writes about the creative writing course she teaches as an elective to fourth year medical students. The group was created to help offer a safe place for students to express their feelings about their experiences with patients in the hospital. In the article Rappaport writes, "one cannot watch death and suffering and not be touched but these feelings are hard to express, hard to articulate and many times impossible to acknowledge as students run around the hospital not quite sure of what they're supposed to do as student doctors. Poetry offers a language to express the inexpressible. For those who wrote, shared and listened in this context, these moments of bearing witness became medical acts."

In the book “Grief and the Healing Arts” and the chapter, “To Know of Suffering and Teaching of Empathy” by Sandra Bertman and Melvin J. Krant, it is also suggested that creative literature such as fiction and poetry may help “promote a humanistic or empathetic grasp of the hurt and pain that often accompanies illness”.

Narrative and story can offer a place to communicate those difficult thoughts and feelings that may have few other channels for expression. This also holds true for the stories of the caregiver or patient advocate. In our September 07 issue of CCAHTE , we featured an article written by Jadranka Novosel (CCAHTE Publisher's Student Support Program Feature Story pg. 26 - 32).

Jadranka Novosel was 29 when her husband David, 33 years old, died of terminal cancer. She expresses her feelings in the article;

"My entire identity as "the wife of a terminal cancer patient" was gone. My other "selves" as student and employee I had let slip long before. I was an empty shell without the luxury of being dead."

Through this powerful narrative Jadranka Novosel chose to share her personal story with the world as an act of love, recounting her personal experience, as she had lived it, to help others.

She closes with the words,

"in the end, the joy, hope and exuberance I credited to my husband remains alive in me. That I choose to remain is my legacy and the greatest love story of all."

Hope lives through the power of story. Through our work with The Canadian Creative Arts in Health, Training and Education Journal there is perhaps no greater goal than to provide an opportunity for a worldwide community to join in the circle and bear witness to the universally human stories we publish, to offer these stories a place and to help in our way to make the inexpressible, expressible.



Full article is available to read at:


September 06 CCAHTE issue

Subscribe free at ccahte@cmclean.com "please subscribe"




Sunday, October 21, 2007

Performing Stories About Aging, Mental Health and Autonomy



Cheryl McLean ,Editor, Publisher, International Journal of The Creative Arts in Interdisciplinary Practice IJCAIP
Editor, "Creative Arts in Interdisciplinary Practice, Inquiries for Hope and Change"

With a degree in the Social Sciences from The University of Western Ontario, London, Cheryl McLean worked for close to twenty years in publishing, corporate communications and adult education. She also had an ongoing interest in the performing arts producing and directing regional theatre in Ontario. Returning to graduate school at Concordia University, Montreal, she worked for two years (01 - 03) as a researcher and group therapist conducting group sessions with older persons at Maimonides Geriatric Hospital and The Rene Cassin Institute of Social Gerontology of Quebec "Over 60 Mental Health Program".

To help raise awareness about issues related to aging, mental health and autonomy, as her thesis presentation, she wrote and acted in a one woman performance called "Remember Me for Birds" based on this research and these experiences.

This work in its early stages had been influenced in field work by therapeutic approaches drawing from theoretical models and techniques utilized in current approaches in drama and expressive group work and drama therapy (Current Approaches in Drama Therapy, 2000), theatre for social change, Augusto Boal, (Theatre of the Oppressed) drama with special populations..realism and Stanislavski influenced acting approaches while working in projects for two years under the direction of Dr. Muriel Gold (Therapy Through Drama: The Fictional Family,2000) and, later, qualitative/narrative and performative approaches, writings by Dr. Norman K. Denzin, (Performance Ethnography, Critical Pedagogy and the Politics of Culture, 2003) and developments in the emerging playwriting and research performance genre, ethnodrama, Johnny Saldana, (Ethnodrama An Anthology of Reality Theatre, 2005).

Working with her Jewish clients, some of them Holocaust survivors, Cheryl had an opportunity to help individuals express their stories (through storytelling, poetry, enactments, other dramatic and expressive methods as well as through one on one interviews). These accounts became the basis for a performance script as did transcripts, oral histories, witness accounts, historical material, topical news stories and current events taking place in Montreal at the time. ( The real names of participants were not used, nor were locations mentioned. In some cases compilation characters were created to protect identities but the authenticity of the stories remained.)

"There is a paternalism with regard to "the elderly" (older persons). This often results in their autonomy being assumed to be less than it is or taken away against their will. I learned I am inappropriately detached from people. I attended because I was curious and I am glad I came. I learned about others but it (the performance) taught me about myself." Researcher, Elder Abuse

The original 30 minute performance was directed by Dr. Muriel Gold , formerly Artistic Director of the Saidye Bronfman Theatre, Montreal. Cheryl had a special opportunity while in Montreal to work as an actor with Muriel in projects for two years studying acting.. (Stanislavski influenced approaches/realism) and training approaches. On April 14, 2003, a solo performance was held for social workers and clinicians at The Rene Cassin Institute of Social Gerontology. Over the next two years following the original performance, the work as an "ethnodrama" advanced through several development phases as more personal and historical narratives were added, as well as written contributions from professionals who worked in aging and health, for example, an audio taped narrative written by a nurse (herself 76 years old) who had directly experienced work with the aged in mental health and palliative care settings.

See video clip

In later performances symbol and metaphor became more important and objects were presented in a "collaged" back drop drawing on significant items identified on site and from true stories. These objects along with news items etc. were used to visually juxtapose and contrast concepts and ideas from past and present.


The research performance in its final form had evolved to become a full one hour ethnodrama. (For more on this genre see, Saldana, J., Ethnodrama An Anthology of Reality Theatre, AltaMira Press) Acting solo in multiple roles, as well as performing personal narratives, Cheryl presented "Remember Me for Birds" for hundreds of academics, healthcare professionals and students at universities, health organizations, medical schools and national conferences in Canada and the U.S.

In follow up discussions and through feedback questionnaires, many audience members commented on the authenticity of what they experienced as witnesses to the stories in the ethnodrama with reflective comments about the value of such work in helping to "re-illuminate" the importance of re/membering the "patient" or "client" as a person with a life, a past history and a unique story.

"Remember Me for Birds" was featured in May 2005 as the keynote performance at The Canadian Association of Schools of Social Work Conference held in conjunction with The Congress of the Humanities and Social Sciences at The University of Western Ontario, London and later that year for the McGill Interdisciplinary Geriatric Seminar, McGill Medical School, Montreal.

The performance was produced independently as an educational film in 2007.

See a video clip from the performance "Remember Me for Birds"

____________________

"Ethnotheatre employs the traditional craft and artistic techniques of theatre production to mount for an audience a live performance event of research participants' experiences and/or the researcher's interpretations of data. This research..meaning to investigate, in its broadest sense, can be conducted by artists, scholars or even by the participants themselves in such diverse fields of study as sociology, anthropology, psychology, education, health care, women's studies, justice studies, ethnic studies, cultural studies, political science, journalism, human communication, performance studies and theatre. The goal is to investigate a particular facet of the human condition for the purposes of adapting those observations and insights into a performance medium..."
Johnny Saldana, from "Ethnodrama: An Anthology of Reality Theatre, AltaMira Press, 2005, (pp. l-2)

"Ethnoperformances are postmodern often building a type of narrative collage that critiques culture. Speakers can "leap forward and backward in time" from present to past, presenting real news accounts against dramatic historic enactments of the past, using poems, monologues, dialogues, voice-overs and interior streams of consciousness."
Norman K. Denzin, from "Performance Ethnography, Critical Pedagogy and the Politics of Culture", Sage Publications, Thousand Oaks, California, 2003.

_______________

References:

Boal, Augusto, "Theatre of the Oppressed", Pluto Press, London, 1979.

Denzin, Norman K., "Performance Ethnography, Critical Pedagogy and the Politics of Culture", Sage Publications, Thousand Oaks, California, 2003.


"Current Approaches in Drama Therapy", Penny Lewis, David Read Johnson Editors, Charles C. Thomas Publisher, Springfield, 2000.

Gold, Muriel, "Therapy through Drama The Fictional Family", Charles C. Thomas, Springfield, Illinois, 2000.

Saldana, Johnny, "Ethnodrama An Anthology of Reality Theatre", AltaMira Press, 2005.


Other references creative arts interdisciplinary practice:

"Creative Arts in Interdisciplinary Practice, Inquiries for Hope and Change", Cheryl McLean, Editor,
Robert Kelly, Associate Editor, Detselig/Temeron Books, Calgary (in process for release 2010) see website:
http://creativeartpractice.blogspot.com/2009/05/available-in-2010-published-by-detselig.html

International Journal of the Creative Arts in Interdisciplinary Practice, IJCAIP, Cheryl McLean, Editor/Publisher, open access peer reviewed international journal, website: http://www.ijcaip.com/


contact: CherylMcLean@ijcaip.com
posted July, 2009


Saturday, June 16, 2007

Narrative Matters Conference 08 Call for Papers and Presentations



Narrative Matters 2008: An Interdisciplinary Conference on Narrative Research, Perspectives, Practices and Issues


"Storying our World"

May 7-10, 2008
University of Toronto
Call for Papers and Presentations
Deadline: September 30, 2007
"As humans we continually story our experiences. We construct our world through our personal, community, institutional and political narratives. The 2008 Narrative Matters conference theme aims to explore all of these narrative sites. Narrative continues to gain recognition as something people do, use and research. The Narrative Matters conference provides a meeting place for people interested in doing, using and researching narrative in diverse contexts and fields. The blurring and crossing of boundaries catalyzes discussion and inquiry at Narrative Matters conferences. We invite proposals for papers, presentations or participatory sessions on a variety of topics around the practice, use and research of narrative."
For more information see website: http://www.narrativematters.com/
(info. above excerpt from website)

Tuesday, May 15, 2007

Medicine, Art and Education/ Narrative Medicine, Poetry in Medical Education Offers a Place for Expression and Healing

Photo C. McLean

Narrative in Education and Practice at McGill Medical School

Maureen Rappaport
MD FCCFP is a family doctor who splits her time between working in a busy community practice in Montreal, Quebec and teaching family medicine residents and medical students. She is also a writer of short stories and poetry mainly about caring for older persons and dying patients.

She believes in a balanced medical education that offers a place for the development of the mind as well as the nurturing of soul. "...We (our medical schools) have been criticized for a failure of heart, for lacking in the art of practice. Reading and writing short stories and poetry in a supportive group setting is one way for some students to discover what is in their hearts and to remember why they went into medicine."


Maureen Rappaport offers a creative writing course as an elective to fourth year medical
students at McGill University called "The Poetry of Practice." Students meet for two and a half hours twice a week for four weeks to read, write and discuss medical literature radically different from what is found in medical textbooks, clinical case notes and scientific journals.

She reports, "One cannot watch death and suffering and not be touched, but these feelings are hard to express, hard to articulate and many times impossible to acknowledge as students
run around the hospital not quite sure of what they're supposed to do as student doctors. For those who can access it poetry offers a language to express the inexpressible. ...For those who wrote, shared and listened in this context ..moments of bearing witness became medical acts. "
"The students in the two years I've held this course told me verbally and in written evaluations they found the course healing, a stress relieving activity, meaningful and a way to maintain
a sense of humanity, a way to resolve conflict and disturbing feelings and a wonderful way to bond with classmates and feel less alone about common experiences."



Sunday, April 22, 2007

Poetry About Memory, Dementia and Search for Identity, Post from Laurie Block

"The poem, Coming to My Senses, came to me, uncharacteristically, complete and nearly finished during a walk along the banks of the Seine River in Old Saint Boniface, the Franco Manitobain quarter of Winnipeg. It struck me as a "keystone" poem; one upon which the integrity of the entire manuscript depended. I knew immediately that it was either the introductory piece, or as it turned out, the final poem in Time Out Of Mind, a collection that explores memory, dementia and the search for healing and identity."Coming to My Senses stands not as an end but a new beginning, the first steps on the path of a transformation in consciousness. Memory and the sense of self depend on our capacity to honour, preserve and amplify the web of relationships that hold our lives intact. Without memory our connections, to self and to other; to the planet and to our gods, become unsustainable. In turning and returning to our senses we become able to express, kindle and experience love from the moment of birth to our final breath.It was an honour to have "Coming To My Senses" reprinted for a wider audience in the September 2006 edition of the CCAHTE Journal. Now I am thrilled to have my book recognized by my peers in the poetry circle. I'll let you know the results as soon as they are in."
Laurie

More Info about "Time Out of Mind" and Laurie Block
http://www.laurieblock.ca/
photo C. McLean

Read poem "Coming to my Senses" in free September 06 Issue CCAHTE
"The Poetry of Practice"
at http://www.cmclean.com/ archived issues.

Guest Post Sunday April 29, 2007
Laurie Block

Good news. I have been shortlisted for two prizes at the Manitoba
Writing and Publishing Awards annual do. It was an honour to be
considered for the McNally Robinson book of the year and
an absolute thrill to win the inaugural Landsdowne Poetry Prize.

My cup is full.Laurie

Bravo, Laurie! Great to hear this news and congratulations,
Cheryl.